Last year the film “Matter of Time,” a documentary about finding a cure to the rare skin disease Epidermolysis Bullosa (EB), debuted at the Tribecca Film Festival. The movie strongly features the efforts of the Epidermolysis Bullosa Research Foundation, which is a group co-founded by Eddie Vedder.
In 2023 Vedder performed a pair of solo concerts at Benaroya Hall to benefit the EB Research Foundation. Footage from those concerts are the musical centerpiece of the movie. Earlier this month it was announced that the film will be coming to Netflix on Feb. 9.
Here’s a summary of the film from its website:
MATTER OF TIME is a compelling documentary chronicling the fight to cure Epidermolysis Bullosa (EB), a rare and devastating genetic disease.
Fueled by the raw energy of Eddie Vedder’s 2023 solo performances in Seattle and driven by the fierce determination of patients, families, and scientists, MATTER OF TIME captures a rising global effort to cure EB and pave the way for thousands of other rare diseases.
Produced by Door Knocker Media in association with the Vitalogy Foundation, this is more than a concert film. It’s a story of defiance, innovation, and the belief that even the most impossible challenges are only a matter of time.
At the forefront of this fight is EB Research Partnership (EBRP) — a trailblazing force proving that rare disease isn’t just treatable, it’s curable. The mission is bold, their impact is real, and this film is their rallying cry to the world.
With an original score by Broken Social Scene and candid interviews from all sides of the movement, the film is a rallying cry for what’s possible when people come together—with urgency and heart—for something bigger than themselves.
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